The INVENTORY OF NEPPE OF SYMPTOMS OF
EPILEPSY OF THE TEMPORAL LOBE (INSET)
There are two columns marked C and
P. You will be writing a number into both of them
which will allow us to know how often the symptom
or event has happened to you. The left column under
P refers to the greatest frequency in the past
(ie: frequency at which it occurred at its worst);
the column under C refers to your current experience
(how often it has happened recently - today, this
week, month, or year-if rare).
Indicate how often the event occurs
by writing the frequency number into columns P
and C. So if the symptom has never happened,
you will write in 0 under Cand P.
If another symptom has been happening currently every
day, you would fill in 5 under C. Let's
imagine an example to make things clearer - Mr. Smith
answered question #24 like this:
He did so because: He remembers that
in the past when the symptom was at its worst, time
seemed to speed up for minutes every week (=4). However,
it does not happen currently (=0). He writes the most
frequent number under each column. (i.e. #4 for past,
under P and zero (0) for current, under
C). Even though it does not currently
happen, he still fills in the 0 because otherwise
his physicians may think he just ignored the question.
He wants to let his physicians know that time was
speeded up, that it lasted for minutes, and that there
was also a sense of timelessness, so he checked each
of those brackets. Also, in the past time was speeded
up weekly (=4) while time was not existing yearly(=2).
He wrote "4" under P because it was
the most frequent number for this symptom in the past
(i.e. weekly (=4) more frequent than yearly (=2).
PLEASE RE-READ THESE INSTRUCTIONS TO
RE-INFORCE HOW TO ANSWER BELOW
| P |
C |
remember C is currently happening to you, P
is any time in the past but not the current time
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1) How often do you have episodes of ( )fits,
( )seizures or ( )"peculiar spells"? |
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2) How often have you had a blackout or
lost consciousness for a short time like seconds
or minutes? Do not include times when you
were knocked unconscious or fainted. |
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3) How often have you or are you told that:
you at times lose contact with ( )staring spells
or ( )episodes where you have a blank look
on your face ( ( )for seconds or ( )minutes? )
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4) How often do you find that you suddenly
feel confused or perplexed (you don't know
where you are, or why you are there, or what time
or date it is) and then have the feeling
pass in a few minutes? |
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5) How often have you for a very short time
like seconds or minutes been completely unaware
that you did or been told that you did any of
the following: ( )odd behaviors like ( )buttoning/unbuttoning;
( )chewing/mouth movements or ( )other unusual
movements or ( )doing very strange things or (
)saying strange things or ( )finding yourself
in places you don't remember going to? |
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6) How often do your ( )moods, ( )feelings
or ( )thoughts fluctuate within minutes for
no reason (like ( ) very happy then very sad)?
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7) How often do you... ( )have clear cut
gaps in your memory during which you cannot remember
anything for 5 minutes or more; ( )miss major
sections of TV shows you have been watching; (
)find yourself driving without remembering how
you got there or where you are going; ( )do strange
things automatically? |
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8) How often have you... ( )lost control
of yourself due to anger; ( )easily become very
irritable over 'nothing'; ( )become extremely
angry; ( )got into an extremely bad
temper; ( )been told by others about an
anger episode of yours that you do not remember;
( )been told that you become violent or aggressive
and you have no recollection of this? |
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9) How often do you have a ( )strange sensation
or ( )pain in your stomach, belly or upper abdomen
not related to eating? |
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10) How often have you come across a smell
when there is nothing to cause it?
( If so, what kind (check applicable)? ( )medicine;
( )steak; ( )perfume; ( )flowers; ( )burning;
( )rotting; ( )synthetic; ( )vomit; ( )incense;
( )musty; ( )grass; ( )bitter; ( )sweet; ( )cake;
( )mustard; ( )other____________ ) |
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11) How often have you seen any of the following?
Check all applicable. ( )dots; ( )lights; (
)patterns; ( )shapes; ( )wrong size; ( )movements;
( )distorted; ( )things moving; ( )stars; ( )bugs;
( )threads; ( )insects;; ( )other_______________________________________
(Were these in front of your eyes or in your side
vision or both? ( )front vision; ( )side vision;
( )both) |
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12) How often do you encounter tastes in
your mouth which you cannot explain? (If so,
what quality? ( )metallic; ( )bitter; ( )salt;
( )sweet; ( )sour; ( )other_______________________________________)
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13) How often do you hear any of the following,
when there is no-one or nothing to cause it? Check
all applicable. ( )buzz; ( )ring; ( )sizz;
( )hiss; ( )tap; ( )songs; ( )whistling; ( )music;
( )single word; ( )arguing; ( )names; ( )voices;
( )jumble; ( )message; ( )instructing; ( )radio/TV;
( )phone; ( )other _________________________________________
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14) How often do you have odd sensations in
part of your body like ( )floating, ( )turning
or ( )moving when you were doing none of those?
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15) How often do you have episodes of sudden,
unexplained dizziness? |
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16) How often do you feel strange sensations
or crawling in your skin without reason?
( )insects; ( )other______________________________ |
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17) How often have you been in a familiar
place and had the impression that you have never
been in that place before? (the opposite of
déjà vu called jamais vu - not
recognized at all, totally unfamiliar) |
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18) How often do you find familiar persons
or places: ( )strange, ( )foreign, or ( )different?
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19) How often have you had déjà
vu: You have ( ) gone somewhere, ( ) met someone,
( ) heard words, ( ) thought something, or ( )
said something, for the first time and
felt it was familiar - as if you had
been through it before? |
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20) How often have you found that, for no apparent
reason, you are actually reliving things
in the past (as if the past flows like a movie
screen before you)? |
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21) How often do you have an overwhelming feeling
that things are ( )weird, or ( )wrong, or (
)distorted? |
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22) How often do you feel you ( )are not
yourself, or ( )are just watching yourself,
or ( )are not part of yourself? |
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23) How often have you felt possessed
by some kind of being or alien or something not
yourself? |
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24) How often do you feel someone is ( )watching,
( )observing or ( )plotting specifically against
you? |
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25) How often does time seem to be ( )speeded
up or ( )slowed down or ( )not existing for periods
( )of minutes, ( )up to several hours? |
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26) How often do you have sudden, unexplained
or uncontrollable attacks of intense fear
for no apparent reason? |
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27) How often have you ( )had episodes of intense
religious feeling, for example ( )you felt
at one with the world or ( )felt that in some
special way God had touched or had spoken to you
or ( )felt as though you were close to a powerful
spiritual life force? |
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28) How often have you had repeated and
unreasonable thoughts that you cannot stop
from thinking even though you try - they keep
coming into your mind? |
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29) How often have you had episodes of compulsive
sexual behavior that was out of character
for you? |
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30) How often have you had episodes of ( )compulsive
eating (binge eating with or without vomiting)
of such intensity that you felt out of control
and could not stop or of ( )deliberate (not religious)
starving of yourself? |
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31) How often do you write the events in
your life in detail down in a diary? |
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32) How often do you hear what is being
said, yet you cannot understand or make sense
of it? |
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33) How often do you discover that: ( ) |
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34) How often do you find that you are ( )slurring
your speech or ( )cannot talk, when not due to
alcohol or other drugs? |
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35) How often do you have difficulty concentrating?
(Has it become worse every year? ( )yes; ( )no)
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36) How often do you feel ( )depressed or
( )anxious or ( )tense ? |
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37) How often do you have severe headaches?
(If so : Do you get ( )nauseous or/and ( )see
stars /funny /blurred with them? ( )most times
/ ( )rarely ) |
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38) How often do you get a ( )pain or (
) sensation in your head which you would not
classify as a "headache"? |
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39) How often do you have double vision? |
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40) How often do you ( )get very tired even
when you had enough sleep or ( )sleep so soundly
during the day that no one can arouse you? |
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41) How often do you snore ( )so loudly
or ( )for so long that others notice? |
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42) How often do you ( )wake three or more
times in the night or ( )lie awake three or more
hours trying to sleep? |
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43) How often do you dream? |
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44) How often do you have exactly the same
repetitive dream and/or frightening nightmares?
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45) How often have you had "psychic", intuitive
or paranormal experiences which prove correct?
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46) How often have you ( )seen events that
happened at a great distance as they were happening
or ( )felt as though you were in touch with someone
when they were far away from you? |
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47) How often have you felt you have left
your body? |
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48) How often have you been close to death
and been aware of a strange experience?
(If so, was it like you had died and come back
(so-called near-death experiences) |
| 49) Do you find there are any specific
things which trigger any one of the symptoms/
experiences discussed (e.g. ( )lights flashing
or a sudden or special ( )sound, ( )smell)? (
)yes; ( )no. If yes, which ones (give the item
numbers from above questions)? Numbers: _____________________________________________
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| 50) Which symptoms began only after
a head injury or other problem like encephalitis,
meningitis or a car accident? Please list (give
the item numbers from above questions). Numbers:
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